Wednesday, July 6, 2011

writing about cfs

"It isn't just my story that I am telling though I am here to tell it. It is the story of millions of people. It is a story that has been hidden instead of shared to its demise. Its invisibility has only perpetuated its mistreatment.  "

With all of the news coming out around Chronic Fatigue Syndrome (CFS) I felt it was time to tell my own experience with having this disease for the past 16 years. I've written an autobiographical short story: http://bealightcfsawareness.blogspot.com/2010/09/short-story-written-and-told-from.html.

Please let me know any thoughts, ideas, critiques on this piece of work. I do believe that these stories need to be out there. People are reading about the evolving science, but don't necessarily understand the significance without understanding the experience.

Sincerely,
Amberlin Wu

MV Voice
OMVNA
NPR
oprah
new yorker

sun magazine?
new york times?

1 comment:

  1. I have looked over quite a few of your posts today after just having discovered your blog and wish I could reply to dozens of things all at once, but am,unfortunately, "done in" after I'd done a bit too much before arriving here. However I signed up immediately as I was too afraid I'd forget to return....not an unreasonable fear!

    I'll be back. Great going, especially what I read about the funding in one section because that has been such a gigantic bugaboo of mine.
    Irene

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