The most recent shockingly unsurprising, appalling visit to the emergency room

written on September 19, 2010 at 12:48pm

I'm weakened from the most recent episode at the ER where they treated me like crap as soon as they heard that I have CFS. They shot me up with all kinds of pain meds for my brain shattering 30+ hour migraine and bone cracking body pain. None of them worked, but only made me super drugged out and then they literally threw me out in less than ten minutes after giving me the last shot.

The ER doc told me that my health problems were not viral (Does anyone in the medical field read the science section of the frikkin news???!? CHRIST!) and needed to be "dealt with at home." Infuriating.

So my hope is I tell all of you about this and you tell everyone you know and maybe it leaks out to doctors so they treat all of these very sick and suffering people with some dignity.

Private pain -> public purpose.

Thanks.

What I Learned In the Last 3 Days about Hospitals and CFS

September 25, 2010 at 10:54pm

1) If you have a serious, controversial illness and feel that your health and/or life are in danger, it is very likely that it is not in your best interest to go to the hospital.
2) If you do go to a hospital, do not be honest about your health history or mention this controversial illness.
3) If you are backed in a corner, and the truth of your illness comes out, the quality of your care will immediately plummet and every effort will be made to have you released immediately.
4) If you happen to have Chronic Fatigue Syndrome and the hospital finds out, you will more than likely get sicker and feel worse each day that you are hospitalized.
5) If you are having one of the shittiest days of your life, having strong, amazing family and friends around you is priceless.

Thank you Mom, Dad, Abby, Clayton, and Rochelle.